I didn’t realize how much it bothered me until my body could no longer hold the emotions inside. I was just washing the dishes and the thought popped into my head that I was unable to make my child’s life a brighter place. I felt so helpless and the tears came like waves down my cheeks. My chest welled up with the pressure that needed to be released. I had been holding on to the feelings for so long so that I could maintain a façade of normalcy. All the while feeling scared inside. Anticipating the day that would come when I would have to face the truth that our son was no longer able to live a normal life.
I’ve been acting strong, telling him things like, “Don’t let anyone else tell you things about yourself that are not true. We know what we’ve got and we’ve got a fantastic kid. We know that one day you are going to be happy and successful and I feel lucky everyday that I have a son like you.” But he still feels so inadequate. He still believes it when his friends tell him that he is terrible at basketball or that they don’t believe that he is cool enough to hang out with them. He tells us almost daily that the kids at school don’t like him. He is hanging on by a thread right now and I don’t know what else to do to help him. The most frustrating part for me is that I know this is out of his control. He is actually a very handsome child who has just earned a black belt in Tae Kwon Do and is an honor student. He should be feeling terrific about himself, but he is not able to. Why?
We’ve been to therapists and doctors and sleep studies, and tests and I still worry about him everyday. I just hope he will be able to hang on until he graduates from high school. To me he is such a sweet, kind and funny child. I get so angry that his mind tells him a different story!
It is so draining on me to have to work so hard to help him to live a normal life.
All that said, “I am grateful for the challenge of raising such a complex child. I am grateful for every day that he is in my life.”